Research & Scholarly Achievement
at Gallaudet University


PROMIS-ASL: Inclusion of Deaf Adults in Patient-Reported Outcomes Research

ID: 3074
Status: Ongoing
Start date: September 2015
End Date: August 2020

Description

Current patient-reported outcome measures are heavily dependent on English, which present serious language barriers to deaf and hard of hearing (D/HH) patients who use American Sign Language (ASL). The availability of patient-reported outcome measures in ASL and English  that is valid for users of accessible technology and services will provide important insights on improving prevention and treatment models that will lead to better personal and public health within the underserved D/HH population. The research plan builds on Dr. Kushalnagar's prior research on communication and quality of life outcomes with the D/HH population. Communication-related fatigue is relevant to health care outcomes.

Principal investigators

Priorities addressed

Funding sources

Products

2016

Kushalnagar, P. & Bruce, S. (2016, April). Population Health Research with Deaf and Hard of Hearing Adults. Paper presented at the PacRim Disability and Diveristy Conference, Hawaii Convention Center, ​Hawaii.

Kushalnagar, P., Atcherson, S., Paludneviciene, R., Schlehofer, D., Bruce, S., Gardner, E., McCaw-Maxwell, D., & Cella, D. (2016). PROMIS-ASL: Patient Reported Outcomes Measure for Deaf\/HH Adults. Poster presented at the 23rd International Society for Quality of Life Research, Copenhagen, Denmark.

2017

Holcomb, T. & Kushalnagar, P. (2017). Prevalence of depression and anxiety disorders in a nationwide sample of deaf adults who use ASL. Poster presented at the SRCD preconference meeting, Austin, TX.

Kushalnagar, P. & Bruce, S. (2017). Deaf women’s health: How are we doing? Paper presented at the Deaf Women United conference, Miami, FL.

Kushalnagar, P. & Perrodin-Njoku, E. (2017). Black Deaf American’s health: How are we doing? Paper presented at the Black Deaf American conference, Baltimore, MD.

Kushalnagar, P., Bruce, S., & Holcomb, T. (2017). Topics in Deaf Health Communication and Quality of Life Research Lab. Paper presented at the Deaf & Hard of Hearing SRCD Preconference Workshop, Austin, TX.

Kushalnagar, P., Bruce, S., Sutton, T., & Leigh, I.  (2017). Retrospective Parent-Child Communication Difficulties and Risk for Depression in Deaf Adults. Journal of Physical and Developmental Disabilities. DOI 10.1007/s10882-016-9501-5

Kushalnagar, P., Kallen, M., & Cella, D. (2017). PROMIS-ASL Psychometrics. HealthMeasures User Conference, Chicago, IL.

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