Research & Scholarly Achievement
at Gallaudet University

Deaf Health Communication and Quality of Life Center

The lab's mission is to do research that links accessibility to health outcomes among deaf/hh individuals. The lab's goals are to:
  1. Design and evaluate health research projects
  2. Share results through presentations and publications
  3. Engage in community partnership, training, and education

Our researchers at Deaf Health and Quality of Life are involved in a wide range of biobehavioral and applied research projects. In addition, our faculty, students, and community members - all from a variety of academic backgrounds - contribute to the lab.

Dr. Poorna Kushalnagar, Center Director


HINTS-ASL: Deaf Signers’ Experience with Seeking Health Information

ID: 3165
Status: Ongoing
Start date: August 2015
End Date: July 2018

Description

The National Cancer Institute's Health Information National Trends Survey (HINTS) is heavily dependent on English, which presents serious language barriers to Deaf patients who use American Sign Language (ASL). The availability of HINTS and similar surveys in ASL and English that are valid for users of accessible technology and services will provide important insights on understanding the trends in Deaf people’s use of the Internet for health-related purposes, therefore improving health communication models that will lead to better personal and public health within this underserved population.

Principal investigators

Priorities addressed

Funding sources

Products

Harris, R., Kushalnagar, P., & Paludneviciene, R. (2017). Open-Ended Cognitive Interview Approach: Rethinking the Gold Standards for Translating Health Measures to ASL. Paper presented at the second Symposium on Signed Language Interpretation and Translation Research. Washington, DC.

Harris, R.  (2017, June 30).  The evolution of graduate sign language teacher preparation programs.  American Sign Language Teachers Association national biannual conference, Salt Lake City, Utah.

Kushalnagar, P. (2017). HINTS-ASL survey: preliminary findings on deaf people’s experience with video relay interpreting and on-site interpreting services in medical settings. Paper presented at the Telecommunications for the Deaf and Hard of Hearing Conference.

Kushalnagar, P., Harris, R., Paludneviciene, R., & Hoglind, T. (2017). Protocol for Cultural Adaptation and Linguistic Validation of Health Information National Trends Survey in American Sign Language (HINTS-ASL). Journal of Medical Internet Research Protocols. doi:10.2196/jmir.8067

Kushalnagar, P., Hoglind, T., Foreman, D., Lawrence, S., Lena, J., & Miller, J. (2017). Deaf Health Communication Film: Seek, Share, and Connect. American Public Health Association Film Festival, Atlanta, GA.

Kushalnagar, P., Ryan, C., Smith, S., & Kushalnagar, R. (2017). Critical Health Literacy in American Deaf College Students. Health Promotion International. doi:10.1093/heapro/dax022.

Kushalnagar, P.Paludneviciene, R., Bruce, S., Simons, A., & Sadler, G. (2016). HINTS-ASL: Inclusion of Deaf Adults in Cancer Health and Internet Research. Poster presented at the International Cancer Education Conference, Bethesda, MD.

Ryan, C., Kushalnagar, P., & Kushalnagar, R. (2016). Social Network Sites: Comparison of Deaf and Hearing Adult Users of SNSs for Health Related Purposes. Poster presented at the Undergraduate Research Symposium, Rochester, NY.


NIH Research Supplements to Promote Diversity in Health-Related Research

ID: 3164
Status: Ongoing
Start date: September 2016
End Date: July 2018

Description

This NIH research supplement to promote diversity in health-related research was used to provide post-B.A. fellow Sheila Bruce with a research experience that will strengthen her ability to conduct qualitative and quantitative research with deaf and hard of hearing adults in the U.S.

Principal investigators

Additional investigators

Priorities addressed

Funding sources

Products

Bruce, S., Day, L., & Kushalnagar, P. (2017). How young can deaf children self-report their generic and deaf-related quality of life? Poster presented at the SRCD preconference meeting, Austin, TX.

Bruce, S., Kushalnagar, P., Atcherson, S, Cella, D, Paludneviciene, R., Schlehofer, D., Gardner, E., & McCaw-Maxwell, D., (2015). Population Health Research with Deaf and Hard of Hearing Adults. Poster presented at the UNYTE Scientific Session: Transforming Population Health Research: Advances, New Methods, and Community Partnerships. ​Rochester, NY. Best Trainee Poster Award.

Bruce, S., Simon, A., & Kushalnagar, P. (2017). Language confidence and patient centered communication in a nationwide sample of deaf adults. Poster presented at the annual American Psychological Association Convention, Washington, D.C.

Bruce, S., Sutton, T., & Kushalnagar, P. (2017). Levels of Emotion Valence and Arousal in American Sign Language. JADARA. 51(1), 21-33.

Kushalnagar, P., Bruce, S., Sutton, T., & Leigh, I.  (2016). Retrospective Parent-Child Communication Difficulties and Risk for Depression in Deaf Adults. Journal of Physical and Developmental Disabilities. DOI: 10.1007/s10882-016-9501-5


PROMIS-ASL: Inclusion of Deaf Adults in Patient-Reported Outcomes Research

ID: 3074
Status: Ongoing
Start date: September 2015
End Date: August 2020

Description

Current patient-reported outcome measures are heavily dependent on English, which present serious language barriers to deaf and hard of hearing (DHH) patients who use American Sign Language (ASL). The availability of patient-reported outcome measures in ASL and English and such that is valid for users of accessible technology and services will provide important insights on improving prevention and treatment models that will lead to better personal and public health within the underserved DHH population. The research plan builds on Dr. Kushalnagar's prior research on communication and quality of life outcomes with the DHH population. Communication-related fatigue is relevant to healthcare outcomes.

Principal investigators

Priorities addressed

Funding sources

Products

Holcomb, T. & Kushalnagar, P. (2017). Prevalence of depression and anxiety disorders in a nationwide sample of deaf adults who use ASL. Poster presented at the SRCD preconference meeting, Austin, TX.

Kushalnagar, P. & Bruce, S. (2016, April). Population Health Research with Deaf and Hard of Hearing Adults. Paper presented at the PacRim Disability and Diveristy Conference, Hawaii Convention Center, ​Hawaii.

Kushalnagar, P. & Bruce, S. (2017). Deaf women’s health: How are we doing? Paper presented at the Deaf Women United conference, Miami, FL.

Kushalnagar, P. & Perrodin-Njoku, E. (2017). Black Deaf American’s health: How are we doing? Paper presented at the Black Deaf American conference, Baltimore, MD.

Kushalnagar, P., Atcherson, S., Paludneviciene, R., Schlehofer, D., Bruce, S., Gardner, E., McCaw-Maxwell, D., & Cella, D. (2016). PROMIS-ASL: Patient Reported Outcomes Measure for Deaf\/HH Adults. Poster presented at the 23rd International Society for Quality of Life Research, Copenhagen, Denmark.

Kushalnagar, P., Bruce, S., & Holcomb, T. (2017). Topics in Deaf Health Communication and Quality of Life Research Lab. Paper presented at the Deaf & Hard of Hearing SRCD Preconference Workshop, Austin, TX.

Kushalnagar, P., Bruce, S., Sutton, T., & Leigh, I.  (2017). Retrospective Parent-Child Communication Difficulties and Risk for Depression in Deaf Adults. Journal of Physical and Developmental Disabilities. DOI 10.1007/s10882-016-9501-5

Kushalnagar, P., Kallen, M., & Cella, D. (2017). PROMIS-ASL Psychometrics. HealthMeasures User Conference, Chicago, IL.

Valid HTML 5 Valid CSS 3 WAVE (WebAIM) Approved
[Logo]